Now that we’ve gotten some answers and a plan for my husband’s recent stroke, I’m having to dive into the pool again, trying to get reasonable help, rather than putting up with the runaround.
Our primary doctor and the neurosurgeon said he needs to be seen by a neurologist for circulation questions in his legs and numbness on the bottom of both feet. (He is a Type II diabetic.) I finally got a call this morning from a neurologist’s office, giving us an appointment. I was simply speechless when she gave us an appointment for the first opening – almost the end of FEBRUARY! Our son’s reaction was, “you’re kidding, right?” My husband’s reaction was, “I’ll be dead by then.”
We have access to a portal where we can contact the nurse of our primary. I consider this a miracle because the nurse is a true gem. She usually gets back to me by the end of the day I leave the message. She has worked tirelessly for us since my husband’s stroke, trying to help us get us the care he needed. I am hoping that we can get a referral to another neurologist who can see my husband in a more reasonable amount of time. We are supposed to be getting tested (I think an arteriogram of his legs) very soon.
The reason I’m writing this is to again stress that each of us has to be our own health advocate.
WE are the ones who care the most, and have the most to gain – or lose – by our attitude and effort. We need to keep pushing wherever we can to fight our way through whatever system is in place to get what we need.

All good luck to you, Linda.
Few years ago here, I got an appointment for at specialist doctor with the waiting time at 1,5 years…
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That shouldn’t be the way things go. The world should be able to do better than that.
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You are right Linda, but that was the public service in the area, where I lived. There were two of these specialists to many, many people in the area. I don’t have private social security, but I use to get treated well here.
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I’m so glad things are better now, Irene.
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Hopefully the nurse can help you get in sooner somewhere.
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She said there is a shortage of neurologists, so this wait time is standard.
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That’s terrible.
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Yes. (Sigh.) My husband has decided he doesn’t want to see anyone else or get any more tests. At least we have a course of action with the new meds, and I will try to get him to walk with me in the evenings.
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I understand. It’s so frustrating. Maybe it was enough of a scare for your husband that he will walk with you. Being proactive is the best way to go. 🙂 Take care of yourself through all of this, too. 🙂
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Thank you, Robin. You’re a very kind lady. I truly appreciate it.
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