Tag Archives: challenging day

Some days are more challenging than others. Today has been a difficult one.
Harvey has been extremely restless and persistent in his efforts to scratch his pacemaker wound, pull out his feeding tube, pull off his diaper, etc. we explain everything to him. He nods and even says “ok” and then goes right back to it.
Today he has been trying to get out of bed to go to the bathroom, this when his therapy showed him to be weaker today. He had tried straightening his back and lifting his head in a sitting position and could only stand for a few seconds.
We explained that he would be able to do this eventually but not today. He said “ok” and then tried to get out of bed again.
The only way we can settle him at all is to hold both hands. We are taking shifts with this, explaining over and over what it is important that he DO and NOT do.
On the good side, he was able to eat some thick soup today. He will have more soup, plus very soft eggs. That is real progress, though he still gets the majority of his nutrition via the feeding tube. Brian and I are exhausted, trying to bolster each other. Sometimes it is hard.